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Day +83: Let non-freedom ring
“I’m not going to wear my ring, okay?” I remember Ramón asking that as we did one last sweep of the house before departing for the...
Jul 2, 20202 min read


Day +76: Mashed potatoes
This morning, day +76, while walking the dogs, my mom turned to me and asked, “Did I tell you about the dream where I was feeding Ramón...
Jun 25, 20203 min read


Day +46: Life is hard.
The past several weeks have been, without a doubt, the most difficult time of my life. Each day, I have been hopeful that Ramón’s status...
May 26, 20203 min read


Our lucky day?
This photo was taken two years ago today, and it has me feeling somewhat nostalgic. I’m longing for a time when I was the only sick half...
Mar 17, 20201 min read


Keeping it ill
It’s everywhere you turn: coronavirus this and coronavirus that. One minute, you read an article about a grieving daughter who suddenly...
Mar 12, 20202 min read


Peace out, 2019
The time has finally come to say goodbye to one of the best, most awful years of my life. I got a cold on Thanksgiving (so thankful),...
Dec 31, 20192 min read


Some mumbo for your jumbo
First, I want to proactively acknowledge that this post might be a little bit out there, but guess who doesn’t care? Me! I read something...
Nov 7, 20192 min read


Wait no more
Yesterday afternoon, I cozied up in bed with the dogs to do a meditation. Let’s be real; we all know that’s the prelude to a mid-day nap....
Oct 22, 20193 min read


It's just a game. But I still hurt.
October 10. 10/10. That sounds like a date filled with promise, doesn’t it? It’s clean and round and associated with a perfect score....
Oct 10, 20195 min read


Grief: A hard pill to swallow
Grief is very real. It’s exhausting, it’s sneaky, and it’s unpredictable. And it spans to all areas of loss – actual, perceived, or even...
Sep 19, 20194 min read


Oh my memoir
Yesterday I finished a four-part memoir writing class. When I saw it was being offered, I thought, 'Well, now's not really a good time,'...
Sep 4, 20192 min read


The gift of time
Look how fancy we get for other people's weddings and wear jeans to our own! I stumbled across this post the other day and realized I...
Aug 9, 20191 min read


One of one
We’re 50 days into this cancer thing. It’s still somewhat surreal to type that, yet it’s also difficult to remember life before the...
Jun 26, 20192 min read


The struggle has ended
After a 22-year battle with cystic fibrosis, my friend Darcey passed away on Wednesday, August 3. I first met her when I was an intern at...
Aug 5, 20172 min read


Equality: Worth every penny
I have never considered myself a very political person. For as long as I can remember, I've always felt that politics were much bigger...
Jul 27, 20173 min read


Walking the path
This photograph will be forever etched into my mind and my soul. The year was 1998, and I was at the annual cystic fibrosis camp, Camp...
Jul 21, 20173 min read
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